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June Edition: Experiencing Rare Conditions

Theo's amazing smile!

Click here to view the entire edition!


Focus: Experiencing Rare Conditions

This month we focus on the experience of rare conditions. While each article discusses a specific rare or undiagnosed condition, the emphasis is how to approach, contemplate, and handle rare diseases more generally. We tackle the questions raised by rare diseases from birth through diagnosis--or the lack thereof--and even beyond death.


The story of one smiling little boy.

From the Archives

Here are past articles relating to this month's topic:

Summer Fun
Back to School
We are looking for parents/guardians to submit articles for our July and August issues on these topics or a topic of your choice. See submissions for more information.  

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