Advocacy and Disability Issues
The section on Advocacy and Disability Issues includes
articles about disability rights, advocating for medical or human
services, and political legislation related to disability and
children's health. It also includes a section on Augmentative communication and Assistive Technology , as well as information on therapies.Advocacy
- Lessons from the Past: Fighting for the Civil Rights of Children with Disabilities
- The Crisis in Pain Control for Children who are Complex, Non-Verbal, or Cognitively Impaired
- A Victory for Children Who Cath
- The Right to Communicate
- Belonging: Introducing Kids to Disability Culture
- Improving Attitudes of Medical Professionals Toward Children with Neurological Impairments
- A Truly Accessible Bathroom
- Why Are So Many Home Health Companies Incompetent? How Negligent Practices Impact Our Children
- Healthcare for Children is a Right
- Working Together for Change: Addressing Nursing Reimbursement
- Mismanagement of Care Leads to Heartache
- Words Matter
- Vaccinating Children with Neurological, Metabolic, and Neuromuscular Issues: A Call for Research
- Starting a Nonprofit Organization: The Example of SWAN
- Medicaid Waivers Must Be Transferable from State to State
- When No One Is Listening: Advocating Successfully with Your Child's Medical Team
- Graduating High School: Schools Forcing Out Teens with Special Needs
- The Importance of Respite
- Congenital Heart Defect Awareness
- Sticks and Stones May Break My Bones But Words Will Devastate Me!
- Playgrounds for All
- The Hidden Financial Costs of Having a Child with Special Needs, Part 2: The Solutions
- The Magnificence of Disability
- Life After Mito
- Avoiding Erroneous Munchausen Syndrome By Proxy Allegations
- Unusual Presentations of Mitochondrial Disease
Disability
- Exchanging Special Needs Equipment and Supplies
- Achieving Independent Mobility Regardless of Disability
- Looking Normal (life with a wheelchair)
- Being a Teenager with Cerebral Palsy
- Sharmiki's Story (cerebral palsy)
- Lessons Learned...Lives Changed
- The Perfect Child: On the Path to Acceptance
- Coping with Neurological Impairment
- Holiday Craft Ideas for Your Child with Fine Motor Impairment
- Adult Diagnosis of Asperger's Syndrome
- Finding Primary Pediatric Care for Your Child with Complex Medical Needs or a Disability
- Federal and State Assistance Programs for Children with Special Needs
- Acceptance is a Rollercoaster
- Coping Lessons from a Reed
- Caregiving: 12 Years of Lessons We've Learned
- Saving Your Sanity through Respite Care
- Autism Research: Simons Simplex Collection Project
- You Don't Have to Yell: Handling Inappropriate Comments
- What Truly Makes a Child Special...And Not Extra Special
- Choosing Clothing for Children with Special Needs
- Using Children's Books to Support Siblings
- Why You (and Your Insurance Company) Need to Get Your Child Standing
- Understanding What It Means to Have a Child Who Has Combined Hearing and Visual Impairments
- An Insider's Guide to Morgan's Wonderland: A Park for Kids with Special Needs
- The Magnificence of Disability
- Teens and Mitochondrial Disease
Therapies
- Early Intervention: Maximizing Your Baby's Development
- How to Evaluate and Choose Therapies
- Neurodevelopmental Treatment
- Vision Therapy: One Family's Experience
- Hyperbaric Oxygen Therapy: What Is It and Will It Work?
- Aquatic Therapy: Not Just a Day at the Pool
Augmentative Communication
- Introducing Switches and Augmentative Communication Devices to Very Young Children
- Outside Voice, Please!
- Adapting Your World for Play
- Communication Aids that Help Answer "What Did You Do at School Today?"
- Pancakes and Lemonade
- How to Get a Communication Device for Your Child
- Using Technology to Alleviate Boredom---Educationally!
- Helping Our Kids Communicate Their Health Care Needs
- If Only He Could Talk! Communication Strategies for Children with Visual Impairments
Politics
- Presidential Candidate Fact Sheet
- Obama and McCain on Disability
- Obama and McCain on Healthcare
- Obama and McCain on Special Education