Caregiving
The Caregiving section contains articles on supporting caregivers, coping, acceptance, organization, home care, recreation, and community, as well as commentaries and articles by children and young adults.Supporting Parents, Acceptance, and Coping
- Just Five Minutes
- Are Caregivers Happy?
- Saving Your Sanity through Respite Care
- Coping with Neurological Impairment
- Cultivating Relationships: Relating to Your "Typical" Friends
- Acceptance is a Rollercoaster
- Coping Lessons from a Reed
- Finding Peer Support as a Parent
- Dealing with Negative Reports and Evaluations
- Taking Care of You, Part I: Treat Yourself to a Massage
- Taking Care of You, Part II: Keeping Yourself Healthy, Physically and Emotionally
- Claiming Your Holiday Cheer
- Christmas on the Wards
- The Importance of Respite
- Using Children's Books to Support Siblings
- How Do You Do It?
- Raising Children Who Don't Eat in a Food-Centered World
- Beating the Odds: Making Your Marriage Work
- Family Matters: Seeing with the Heart
- Raising Healthy, Happy Siblings
- Remembering Sebastian with Joy: Rituals of Remembrance
- Living Your Best While Preparing for the Worst
- A Process of Grief: The Reality of Grieving a Child with Complex Health Care Needs
- Teens and Mitochondrial Disease
- Seasons of Love
Organization and Preparation
- Creating a Care Notebook for Your Child
- Tips for Coping with Extended Hospital Stays
- Preparing for a Doctor Visit
- Creating a Medical Summary for Your Child
- Strategies for Organizing Medications
- Organizing Supplies: A Pictorial Essay
- Keys to Organization: Maintaining Communication, Time and Sanity
- When No One Is Listening: Advocating Successfully with Your Child's Medical Team
- Choosing Clothing for Children with Special Needs
- Organizing and Preparing to Leave Your Child With a Caregiver
- Wearable Medical Alert Options
- Organizing Your Child's Lab Results
- The Hidden Financial Costs of Having a Child with Special Needs, Part 1: The Problem
- The Hidden Financial Costs of Having a Child with Special Needs, Part 2: The Solutions
Home Care and Waivers
- Exchanging Special Needs Equipment and Supplies
- Living with a Nurse in the Home: Suggestions, Stories, and Solutions
- How to Evaluate and Choose Therapies
- Special Needs Beds: Getting Insurance or Medicaid to Pay
- Keeping Your Child Out of the Hospital: Treating Serious Illnesses at Home
- Why Are So Many Home Health Companies Incompetent? How Negligent Practices Impact Our Children
- Working Together for Change: Addressing Nursing Reimbursement
- Federal and State Assistance Programs for Children with Special Needs
- Facts about Weighted Blankets and Directions to Make Your Own
- Medicaid Waivers Must Be Transferable from State to State
- Obtaining In-Home Services
- Patient Centered Care in Home Health Care Companies
- The Importance of Respite
- Organizing and Preparing to Leave Your Child With a Caregiver
- Breathing Easy: A Trach at Home
- Being a Kid: Thriving with a Trach and Vent
- An
Introduction to Pediatric Palliative Care
Medical Care at Home
- Solutions for Temperature Regulation Problems
- Interpreting Your Child's Lab Results
- Normal Vital Signs in Children: Heart Rate, Respirations, Temperature, and Blood Pressure
- Recognizing and Treating Fevers in Children with Complex Medical Issues
- Vibration for Pain Control and Calming
- Finding Primary Pediatric Care for Your Child with Complex Medical Needs or a Disability
- Helping Our Kids Communicate Their Health Care Needs
- Organizing Your Child's Lab Results
- Avoiding Erroneous Munchausen Syndrome By Proxy Allegations
Recreation
- Guide to Holiday Shopping for Your Child with Special Needs
- Holiday Craft Ideas for Your Child with Fine Motor Impairment
- Non-Food Stocking Stuffers
- Using Technology to Alleviate Boredom---Educationally!
- Christmas on the Wards
- Using Fun, Humor to Help Children through Hospital Stays and Procedures
- Inexpensive and Easily Available Toys That Work for Children with Special Needs
- Special Recreation is About Fun! Thoughts from an Adapted Recreation Coordinator
- Playgrounds for All
- Your Child CAN Go To Camp
- An Insider's Guide to Morgan's Wonderland: A Park for Kids with Special Needs
Community and Organizations
- Community Award: Katy's Closet, a program of Team Up! With Families
- Fundraising/Research Award: Josie Mazzo Children's Charities
- Support Award: George Mark Children's House
Perspectives
- Christmas with an Autistic Twist
- How to Thwart a Cook
- From Fear to Freedom: One Very Special Service Dog
- Looking Normal
- The Pregnancy Journal of a Mito Mom
- Lessons Learned...Lives Changed
- The Perfect Child: On the Path to Acceptance
- Temperature Instability: Isaac's Story
- Outside Voice, Please!
- Pancakes and Lemonade
- Lauren's Story: Tube Feeding at College
- Our Tube-Weaning Roller Coaster
- Trystyn's Story
- Adult Diagnosis of Asperger's Syndrome
- Caregiving: 12 Years of Lessons We've Learned
- Balance
- A Life Turned Upside Down: Parenting Children with Special Needs When You Also Have a Disability
- Alize's Story: How Alize Earned His Wings
- You Don't Have to Yell: Handling Inappropriate Comments
- Glimpses of Italy: When Your "Typical" Child Faces Medical Issues
- What Truly Makes a Child Special...And Not Extra Special
- Monitoring Love on the Pulse Oximeter
- How Do You Do It?
- Breathing Easy: A Trach at Home
- Being a Kid: Thriving with a Trach and Vent
- Family Matters: Seeing with the Heart
- Lessons from Eric
- Trying to See Clearly
- Channeling Dan
- The Magnificence of Disability
- Seasons of Love
- A Break from Mito
- "I So Tired"
Articles by Children and Young Adults
- Being a Teenager with Cerebral Palsy
- Sharmiki's Story
- Sibling Stories
- Young Children's Voices
- Helping Kids with Autism
- A New Perspective on Life
- Talents & Friends
- What's the Difference?